Endoscopy

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Tonight I am exhausted from remembering. 

From being the memory.

It started at 5:00 yesterday evening. 

I made us dinner.

He was not to supposed to eat after 6:00 pm,

preparing for today’s endoscopy.

No food after 6,

no liquids after midnight.

I put tape across the refrigerator door.

I wrote NO FOOD on the tape.

I brought him into my sacred space

so I could make sure he didn’t eat.

He sat on the day bed and did crossword puzzles.

I painted with watercolors.

After a while, he got up.

Where are you going? I asked.

Twice.

“To get a snack.”

Again

I explained that food was forbidden.

He was NOT happy.

I wasn’t about to stay awake all night

to keep him from drinking water.

I just hoped it wouldn’t matter.

No breakfast made him grumpy.

More explanations about the endoscopy.

He sat in my workroom

while I wrote a blog post and sewed.

The morning dragged.

Finally we drove to Kingston.

We were early.

They were 45 minutes late.

“We have a line of colonoscopies,” she explained.

I laughed at the image.

He wanted me to come with him—

the man who insists he’s not anxious.

They said no.

Not enough space to maintain social distancing.

I sat in the car.

Waiting.

Listening to an audiobook

because I forgot my handwork and my iPad.

Someone came out to get me.

“He’s sitting up in the chair,” she said.

He was woozy.

“What did they do?”

I explained again.

“What’s this?”

He showed me the green tape on his arm.

This man who is so big in my sight

because he takes up so much

of my thoughts and care and energy—

this man suddenly looked small

and muddled,

dwarfed

by the oversized recliner chair.

    

Dementia: Laugh or Cry?

Sometimes caregiving for a person with dementia becomes so difficult and absurd that the only possible response is— laugh.

Yesterday, I was cleaning out files.  The box of paper to be recycled was overflowing.  My husband wandered upstairs to check in. 

“Can I do anything to help you?” he asked, as he often does.  (I am blessed with a sweet-tempered, cooperative demented person, not like some caregivers who deal with belligerence.)

“Well, yes,” I answered.  “I need a large garbage bag for these papers.”

“Where are the bags?” he asked.  (Are you paying attention?  Most spouses would know where to find the garbage bags.)

I told him, “In the cabinet to the left of the sink.  They’re in a box under the medium sized bags.”  I illustrated the size spreading my arms.  “About this big.”

He turned to go on his errand.  Stopped.  “What am I getting?”

“A large garbage bag.”

“Where are they?”

I told him again. (By this time, I’m already thinking I should go get the bag myself.  But he wants so badly to be helpful.)

He made little grunts as he went downstairs–his arthritic knees complaining.

He was gone a while.  I moved on to thinning out the notes pinned to my bulletin board.

He came back holding—

three packages of snacks!!

Chip Ahoys.  Cheddar rice cakes.  Fig Newtons.

“Is this what you wanted?” he asked.

I looked at the snacks.  I looked at his face.  This dear man, who tries so hard, who vehemently denies his condition. (“I don’t believe it,” he says.)

What could I do?  I laughed and hugged him hard and long.

Then I took the snacks and went downstairs to get the garbage bag.

Caregiving is challenging. That’s why I value my caregiver group.  We Zoom twice a month.  These are the women who understand.  Who often can offer resources to assist with a problem. 

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Here are two excellent resources for caregivers:

Ulster County Office for the Aging  845-340-3456

1003 Development Court, Kingston, NY 12401

Alzheimer’s Association

800-272-3900

www.alz.org